Well here I am, and this is what I am

In September last year, after a couple of years of ongoing sometimes intrusive tests and repeated blood tests, my GP finally diagnosed me with ME and Fibromyalgia.  In a way it was a relief to finally be able to put a name to this thing which has overwhelmed me, and which plagues me on a daily basis.  But in a lot of ways, it was a lot worse knowing.  Because unlike some of the other illnesses suggested and tested for, ME and Fibro don't have a quick cure. Or indeed any cure at the moment.  This is a battle I have to fight day in day out for I don't know how long.  No one can tell me what the prognosis is.  Only that some people get better and some don't.  Some have deteriorating health, and some have episodes or relapses.  

Since I had my diagnosis, I've studied what I can, and learnt as much as I can about the illness.  My GP is working with me to try and find effective pain control, and to treat the illness however we can.  Currently I take an anti-inflammatory (naproxen) and copious quantities of codeine and paracetemol for pain relief.  Citalopram, Vitamin D and Calcium supplements, Zinc and Vitamin C (I take these to try and boost immunity, as I seem to get every bug going).  I've finally got a referral through to our local CFS specialist clinic, so I can start working with them on managing my illness.  Sadly though most of what I do already seems to be what they advise.  Pacing seems to be the most effective way of functioning and getting through the day.

Anyway, about me.  I just turned 41, I have 2 gorgeous young children, who can be alternatively brilliant and total handfuls, sometimes changing in a matter of minutes.  They help to give my day some structure, as I have to get up for school runs, make lunches and teas, and organise everything for them.  There are many times that this is incredibly difficult as you can imagine.  

I've decided to write a blog as a sounding board, a way of keeping track, and somewhere to share information and hopefully support to others.  

This is me and my personal journey with ME.